Some of you know that I suffer from what was diagnosed as hereditary Neuropathy. In the past 12 years this illness has slowly destroyed my health. I have lost chunks of my eyesight, I have an arrhythmia, it affects my breathing, swallowing and rendered my hands and legs mostly numb; and best of all it leaves me with chronic pain laced with tremors and horrific intensified pain attacks. I used to dance and do martial arts this illness has taken this from me and it is progressively attacking my vocal range and dexterity of my hands. Because I live in America and was 9 months short of regular disability I am stuck with a 800$ stipend and medicare. Medicare will not pay for tests to determine which hereditary neuropathy I have, which means there is no real treatment. They throw medications at me to patch up the most dangerous symptoms and that is that.
Then came covid. I got it before it was known to the general public and was sick as a dog. After I recovered I suddenly had extreme issues regulating my blood pressure and I became diabetic, one of the known side effects of this damn virus so I am told. This further eroded my heath and is a consistent problem in my daily life now brining me to the hospital again and again.
a few weeks ago the seizure specialist my neurologist referred me to denied me for the 4 time because I am on medicaid, meanwhile my pain attacks are more frequent and longer, example my last that lasted 8 hours and had me crying and whimpering for most of it. The pain clinic won't see me because I need to renew my ID but I can't get a damn appointment to renew it and haven't been able to for the last 2 years.
Fact I am mostly on my own if I want to get better or at least offer my condition appropriate resistance. And this is what I decided to do my doctors are split in two groups those who want to help me but can't and those who don't give a fuck and wont because I do not pay them enough( or can't pay then enough to care). It is up to me at this point to fight this so I am going to self experiment but also am totally open to suggestions. There are somethings and supplements I cannot do because of the medications I am on and possible reactions as well as a myriad of allergies I am plagues with. I am also a militant vegan and not willing to budge from that so that is to be considered as well.
I have been vegan for the last 13 years, while it helped with some of the auto immune issues I became vegan for the animals so my nutrition was up to about 3 months a disaster. I ate what was cheap and fit into my mini budget. I did however always supplement with a vegan multivitamin which. kept me semi ok. When I first started losing my faculties I fell into deep depression and moved into the fridge , I gained an incredible amount of weight that i am finally also working to get rid of because a damaged heart does not need this on top of the rest. How much weightI am not really to talk about because I run risk into falling into old eating disorder patterns , but once I am ready I will document that as well.
currently my traditional Medications are as follows
10am
1000mg gabapentin
50 mg losartan
2pm
Metoprolol 50 mg
6pm
5mg Amlodipine
januvia 100mg
Nitrofurantoin 50 mg (antibiotic have to take it or I will get infections but i really want to ditch it eventually )
8pm
50 mg Losartan
10pm
500 mg Metformin
50 mg Metoprolol
supplements
10am
Ritual multi vitamin not switched to the menopause one yet
MSN 1000mg
2pm
beetroot capsules 2x 1200 mg
MSM 1000mg
400 mg DHA just started today.
Goli applecider vinegar gummies
Goli green gummies ( just started this week )
6pm
vitamin C 1000mg just started this week
10pm
1000mg msm
I am waiting for a 3 month supply of Fatty 15 which I will be taking as well and want to get back to cranberry extract as well for my bladder issues.
Obviously I need to start moving again but need to be carful because of my heart and also because i am mobility impaired. SO i ned to start with things i can do sitting down first and then progress to the rest if my legs will allow it as they are not always that stable.
So if you guys have another idea for the immune compromised and also to combat my nerve damage let me know other wise I am just going to keep researching. Am Looking into CBD for pain as well.
I will be posting updates for those intreated but also for myself to see where things are going.
other stats -
Age -53
Weight class -Jabba the Hutt
Diet -plant based
on
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this little girl was made for me by @barbara-orenya